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Post by champagneprince on Apr 10, 2019 19:14:18 GMT 1
Please help, this may well be in your future interests At 1.30pm on Monday 11th February 2019 my wife suffered a choking incident at home which required emergency treatment at our local A&E. Discharged at 5pm, she didn't get home until after midnight. She was a priority patient receiving palliative care for incurable cancer. She passed away just 12 days later. A&E staff told me it was common for patients to wait more than three hours for transport home and anything that could be done to reduce this time would be beneficial to them. The whole point is that NOBODY should wait more than an hour for transport home after being discharged (please note that my wife needed specialist assistance that I couldn't provide, otherwise I would've done). It causes distress for the patient and loved ones and causes A&E staff extra work, when they are already overstretched. In my wife's case this was specialist medication that needed taking at 4pm and 8pm, this was not available in A&E. The A&E nurses and doctors had to source the drugs from the wards otherwise she'd have become symptomatic of her illness (multiple brain tumours). This involved a lot of rallying around and involvement of quite a number of different people. I had the drugs at home, but because we didn't know when the transport would arrive I couldn't leave her side! Having a 1 hour 'deadline' would ensure that there is no indefinite wait. One day, this could well be you or one of your loved ones. The one thing you will hope for, if or when it happens, is that your loved one is not kept waiting indefinitely. This not only happens in A&E, but in other areas of the NHS too, e.g following cancer treatment. I'm not sure what the answer is or how it can be achieved but the first port of call is to get it heard in parliament and hopefully it can be moved on for all our benefits from there. Anything you can do e.g sharing on social media would be greatly appreciated. All the best and thanks. petition.parliament.uk/petitions/242236I'm happy to talk about this if anyone wants any further information
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Post by thesensationaljt on Apr 10, 2019 19:41:00 GMT 1
My sincere condolences to you and your family on your very sad loss.
I've signed your petition.
Very best regards,
John. xx
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Post by champagneprince on Apr 10, 2019 19:43:57 GMT 1
My sincere condolences to you and your family on your very sad loss.
I've signed your petition.
Very best regards,
John. xx
Thanks JT, much appreciated. This is truly something that could happen to us all at some stage and it's not a nice situation. Can it be resolved? Who knows, but it certainly should be heard.
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Post by Red Rose In Exile on Apr 10, 2019 19:57:12 GMT 1
Wow, what to say. Condolences hardly seems adequate.
Have signed the petition and put the details on my Facebook.
Best Regards
Dave
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Post by Deleted on Apr 10, 2019 20:04:56 GMT 1
All the very best fella.
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Post by champagneprince on Apr 10, 2019 20:09:07 GMT 1
Wow, what to say. Condolences hardly seems adequate. Have signed the petition and put the details on my Facebook. Best Regards Dave Thanks for that. Very much appreciated. For further info, she choked on a lamb dinner I cooked, the brilliant paramedics got here within 10 minutes with her in my arms basically choking to death drifting into unconsciousness. She was in the hospital less than an hour later, discharged 2 hours later after x-rays and tests, but then waited 7 hours to get home! It was utter madness and I felt so sorry for the A&E staff who did their very best. I was so agitated I called for the head of A&E who arrived and was fantastic, but told me it was a regular thing for people to wait more than 3 hours. She agreed that it caused them unnecessary problems and anything that could be done she would support.
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Post by champagneprince on Apr 10, 2019 20:15:16 GMT 1
Thank you Nick, all the best. I have come through a period of grief of basically just moping around feeling sorry for myself and have decided to get off my arse and do something, so today I printed 100 petition leaflets and went and shoved them through 100 letterboxes. My plan is to do that now for the next 4 months, get 10,000 delivered and see if that can get things rolling, but it'll be social media that really gets things going. It was actually nice to get out there on a nice warm afternoon and do some speed walking, but some of those letterboxes can be lethal!
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Post by Deleted on Apr 10, 2019 20:15:28 GMT 1
Have signed the petition.
I do hope that something gets done about this following your heart breaking story.
I pass on my deepest sympathy and I wish you well
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Post by Deleted on Apr 10, 2019 20:29:47 GMT 1
Thank you Nick, all the best. I have come through a period of grief of basically just moping around feeling sorry for myself and have decided to get off my arse and do something, so today I printed 100 petition leaflets and went and shoved them through 100 letterboxes. My plan is to do that now for the next 4 months, get 10,000 delivered and see if that can get things rolling, but it'll be social media that really gets things going. It was actually nice to get out there on a nice warm afternoon and do some speed walking, but some of those letterboxes can be lethal! We all deal with our stuff differently mate. But, good for you. Good luck.
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Post by champagneprince on Apr 10, 2019 21:09:36 GMT 1
Have signed the petition. I do hope that something gets done about this following your heart breaking story. I pass on my deepest sympathy and I wish you well Thank you Lord, much appreciated. She had battled breast cancer and managed to beat it off back in 2005 (before I met her) and then went 7 years clear of it. It returned in her spine in 2012 and becomes incurable once it has spread. It travelled to her lung and liver which she again beat off with chemotherapy but there were complications eg was rushed to Stoke for a drain on her lung following her 8th Chemo treatment. In 2016 she was diagnosed with a brain tumour, which of course needed removing. It was the night of Brexit, which I always say was the most surreal of my life, where I was the solitary person in the waiting room of Stoke intensive care watching all the drama unfold whilst my Mrs was having her op. We obviously had no idea how she would come out of it, but she did, with only slight damage to her eyesight. It was thanks to the genius of the surgeon that she got through relatively unscathed. Lots of treatment followed, various hormone stuff and versions of chemo, but back in October with some double vision occurring she was scanned only to find there were further inoperable tumours in her brain and brain stem. She was given 8-12 weeks to live. My work was very good and allowed me time off on full pay to look after her which I did with some support from the hospice. She spent some time in the hospice over Christmas as she went downhill quite rapidly and then suffered complications in there (an infection, diabetes due to steroid use and some pain issues). She died peacefully at home with me and our neighbour at her side at the end of February. Very sad and it has been difficult to cope, not been to a match since October (although that doesn't seem to be a bad thing!) but through the journey there are have been a few experiences in both the hospice and hospital that have not been good, which I feel I can (and will) have an impact on, all in a positive way and requiring system change and pressure on those at the top rather than anything to do with nursing and resources which, other than some exceptions, have been fantastic.
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Post by Deleted on Apr 10, 2019 21:27:42 GMT 1
It really saddened me to read of your experience. This just shouldn't be the case. I really do hope that your petition succeeds.
I've already signed it and I will encourage my family and friends to do likewise.
Best wishes
Richard
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Post by champagneprince on Apr 10, 2019 21:53:35 GMT 1
It really saddened me to read of your experience. This just shouldn't be the case. I really hope that your petition succeeds. I've already signed it and I will encourage my family and friends to do likewise. Best wishes Richard Thank you very much. Although she was three weeks beyond her prognosis, I do believe the experience of the choking, the trauma of the paramedics and then all the hassle of the transport home, made her succumb in many ways. I basically spoon fed her for most of the two weeks that followed and I think she 'gave up' fighting the brave battle she had fought. It wouldn't have been much longer of course, but those hours between 6 and midnight could've been spent at home in comfort, instead of waiting in sheer exasperation on a trolley in a 'waiting to go home' cubicle, not knowing how long it could be. At one stage we were told it could be as long as 3am in the morning. Truly, I hope that nobody EVER has to go through the same experience. There were two other people waiting too, both of them elderly, one of which clearly had some sort of 'dementia' issues (I'm guessing at that, but basically was very confused). This lovely, frail old lady was taking up a lot of the staff's time, when an ambulance should've been there to get her home.
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Post by essofsteel on Apr 10, 2019 22:17:03 GMT 1
Signed up. So sorry for your sad loss.
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Post by Deleted on Apr 10, 2019 22:21:03 GMT 1
Have signed the petition. I do hope that something gets done about this following your heart breaking story. I pass on my deepest sympathy and I wish you well Thank you Lord, much appreciated. She had battled breast cancer and managed to beat it off back in 2005 (before I met her) and then went 7 years clear of it. It returned in her spine in 2012 and becomes incurable once it has spread. It travelled to her lung and liver which she again beat off with chemotherapy but there were complications eg was rushed to Stoke for a drain on her lung following her 8th Chemo treatment. In 2016 she was diagnosed with a brain tumour, which of course needed removing. It was the night of Brexit, which I always say was the most surreal of my life, where I was the solitary person in the waiting room of Stoke intensive care watching all the drama unfold whilst my Mrs was having her op. We obviously had no idea how she would come out of it, but she did, with only slight damage to her eyesight. It was thanks to the genius of the surgeon that she got through relatively unscathed. Lots of treatment followed, various hormone stuff and versions of chemo, but back in October with some double vision occurring she was scanned only to find there were further inoperable tumours in her brain and brain stem. She was given 8-12 weeks to live. My work was very good and allowed me time off on full pay to look after her which I did with some support from the hospice. She spent some time in the hospice over Christmas as she went downhill quite rapidly and then suffered complications in there (an infection, diabetes due to steroid use and some pain issues). She died peacefully at home with me and our neighbour at her side at the end of February. Very sad and it has been difficult to cope, not been to a match since October (although that doesn't seem to be a bad thing!) but through the journey there are have been a few experiences in both the hospice and hospital that have not been good, which I feel I can (and will) have an impact on, all in a positive way and requiring system change and pressure on those at the top rather than anything to do with nursing and resources which, other than some exceptions, have been fantastic. Thanks for that reply. Very touching and demonstrates the love and care you provided for her perfectly. You mention Brexit . All of sudden in context it really doesn’t matter much anymore.
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Post by thesensationaljt on Apr 10, 2019 22:33:57 GMT 1
It really saddened me to read of your experience. This just shouldn't be the case. I really hope that your petition succeeds. I've already signed it and I will encourage my family and friends to do likewise. Best wishes Richard Thank you very much. Although she was three weeks beyond her prognosis, I do believe the experience of the choking, the trauma of the paramedics and then all the hassle of the transport home, made her succumb in many ways. I basically spoon fed her for most of the two weeks that followed and I think she 'gave up' fighting the brave battle she had fought. It wouldn't have been much longer of course, but those hours between 6 and midnight could've been spent at home in comfort, instead of waiting in sheer exasperation on a trolley in a 'waiting to go home' cubicle, not knowing how long it could be. At one stage we were told it could be as long as 3am in the morning. Truly, I hope that nobody EVER has to go through the same experience. There were two other people waiting too, both of them elderly, one of which clearly had some sort of 'dementia' issues (I'm guessing at that, but basically was very confused). This lovely, frail old lady was taking up a lot of the staff's time, when an ambulance should've been there to get her home.
I can't pretend to say I've "enjoyed" reading your posts, they were heartbreaking, but I'm a good listener. If you feel the need to put anything in writing which you don't want to put on the main board, do PM me in these difficult times for you.
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Post by shrewblue on Apr 10, 2019 22:43:18 GMT 1
So very sorry to hear of the your sad loss and my most sincerest condolences. To lose a loved one is one thing but to have to deal with the frustrations you endured is dreadful at a time of such awful emotional stress. I do hope your petition gains traction and something positive comes out of it to improve the experience of those who may be in your position in the future. Petition signed.
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Post by JohnG on Apr 10, 2019 22:46:32 GMT 1
Have signed the petition.
Heartbreaking story with what you have been through. Fair play for setting up this petition and I hope you can get as many signatures as possible.
Best wishes to you and your family. Although you haven't been to a match since October, I hope you can join the ranks again soon.
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Post by champagneprince on Apr 10, 2019 22:58:45 GMT 1
So very sorry to hear of the your sad loss and my most sincerest condolences. To lose a loved one is one thing but to have to deal with the frustrations you endured is dreadful at a time of such awful emotional stress. I do hope your petition gains traction and something positive comes out of it to improve the experience of those who may be in your position in the future. Petition signed. Thank you. When I left A&E that night, it was packed...at midnight! Everyone in the department just seemed so stretched. It also seemed they'd accepted this was the reality and as good as it was ever going to be. It was sad in many ways, not only because of the circumstance but also because there was a sense that everyone was done with banging their heads against a brick wall. Everyone was doing their job brilliantly from what I could tell (under unbelievable pressure), but no time to really think about root cause issues or more likely just fed up with asking, telling, shouting at senior management about potential solutions that were never listened to.
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Post by champagneprince on Apr 10, 2019 23:06:24 GMT 1
Have signed the petition. Heartbreaking story with what you have been through. Fair play for setting up this petition and I hope you can get as many signatures as possible. Best wishes to you and your family. Although you haven't been to a match since October, I hope you can join the ranks again soon. Thank you. Before I stopped work in October, on the final day before I finished, I had a 'walls closing in moment' that I'd never experienced before (there were people starting to fill up the office space as they'd come in for a meeting). I returned to work last week and had the same experience again, but been ok since. So, going to a game would actually be a big deal for me at the moment, although some beers before the game might help! The petition was set up last month, but it's only now really that I've felt like giving it a really good push, so anybody who's got any advice of how to 'market' this and get this out there in the modern age it would be greatly appreciated (I'm happy to spend a bit on it as I feel so strongly about it).
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Post by zenfootball2 on Apr 11, 2019 9:13:30 GMT 1
i have signed the petition , i would just like to add my condolences and hope this petition achieves what you hope for.
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Post by horse01 on Apr 11, 2019 9:27:49 GMT 1
I have happily signed the petition.
My deepest most sincere condolences for your tragic loss.
Everything should be done to make all patients as comfortable and stress free as possible (which I’m sure the staff did do), but the current constraints that these wonderful staff members have to work under, are just plainly unacceptable. When our emergency services (NHS, Ambulance, Police, Fire, Air Ambulance) are stretched to the limit and severely underfunded, yet over £50billion can be found for an unnecessary new train line, something isn’t right.
It is remarkable and I am full of admiration how you are turning such a personal tragedy into such a positive, that could potentially benefit so many others.
I wish you all the very best in your efforts with the petition, and also with everyday life moving forward. Hopefully over time, you may be able to find some comfort in visiting the Meadow once again, and I am sure the whole Blue and Amber family are with you
Mark x
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Post by Pilch on Apr 11, 2019 10:01:18 GMT 1
signed
very sorry to hear about your loss
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Post by ssshrew on Apr 11, 2019 10:05:37 GMT 1
I have signed. As others have said yours is a very sad story and puts everything else into perspective. Nothing is as important as personal happiness and health. You are bound to go through some difficult times but hopefully will be able to come through. Your wife must have been a very courageous woman to go through all that treatment and you must have been a great comfort to her.
Take care of yourself.
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Post by Deleted on Apr 11, 2019 10:31:19 GMT 1
So very sad to hear such terrible news. My heart goes out to you. Signed.
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Post by percy on Apr 11, 2019 12:15:32 GMT 1
Signed - very sad to hear.
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Post by hannudlad on Apr 11, 2019 13:01:02 GMT 1
Signed your petition. Brought a tear to my eye especially as my Dad faces up to his own battle 25 years on from losing my Mum to the dreaded disease pre-mobile phones day remember making the call to my sister in Australia to say you have to get on a plane now as Mums condition deteriorated rapidly needless to say she returns from Australia again in the next few days. Thanks to the hard work of the Chairman, Manager and Players of our football club we are able to maintain some normality in our lives at difficult times win, lose or draw it gives us something else to talk about. Let's get behind our team for the rest of the season COYB.
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Post by champagneprince on Apr 11, 2019 13:56:12 GMT 1
i have signed the petition , i would just like to add my condolences and hope this petition achieves what you hope for. Thank you. Getting 100,000 signatures is truly a mammoth task and in reality I will probably be lucky to get 500. At 10,000 somebody from the government gets in contact so I assume this is where you provide them with more detail. It sounds easy enough to get people to divert away from what they are doing to spend 5 minutes filling in a few things, but the reality is that it's easy to look at and forget about without actually doing anything (I know, I've done it with other petitions plenty of times). It works out that you need about 550 or so a day, 4000 or so a week. But to really get people to sign up to it, it needs to be something in the National psyche to grab the interest eg Brexit, rather than something 'obscure'. If I had a petition for the Queen to punch Theresa May in the face live on air then I'd probably get 100,000 in no time! It's much more difficult to get people to sign up when the situation involved isn't directly affecting them.
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Post by champagneprince on Apr 11, 2019 14:03:11 GMT 1
signed very sorry to hear about your loss Thanks, sadly this is an illness that we all get affected by in some way and 1 out of 3 will have to fight themselves. In that respect we should perhaps accept that it's a 'normal' part of our 21st Century lives, but of course it isn't. The NHS is in crisis, that is for sure, but in the main the staff within it do a fantastic job under very difficult constraints, many of which are solvable (in my view), what we don't want is those good people to give up because without them we are truly stuffed. The whole population needs to do their bit to help them, including the companies that supply it or have a stakehold in it in some way.
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Post by The Shropshire Tenor on Apr 11, 2019 15:03:28 GMT 1
Also signed, we have some insight into what you have been through as my sister in law is also suffering from breast cancer that has metastasised into her spine and is now in the terminal phase.
Dave.
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Post by champagneprince on Apr 11, 2019 15:15:33 GMT 1
Also signed, we have some insight into what you have been through as my sister in law is also suffering from breast cancer that has metastasised into her spine and is now in the terminal phase. Dave. Thanks and so sad to hear that. I will send you a PM.
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